Welcome to Stroke and Wellbeing Advisory Group

 

Stroke is the second leading cause of death globally as of 2019 and the fifth leading cause of death and disability in the United States. We aim to create a community of stroke survivors and caregivers to better understand how people recover after a stroke. We want to study the non-medical factors that impact people’s health after a stroke, specifically how wellbeing changes once a stroke has happened. If we understand how to help improve wellbeing after stroke, we hope to design new treatments and help doctors and nurses who care for stroke survivors improve their practices.

We have been recruiting stroke survivors and caregivers to take part in this study. Our team spans 3 universities (MGH/Harvard, Yale University, and the University of San Francisco) and is supported by the American Heart Association.

 

 

Our Mission, vision, and values

 

Mission: Listen to the participants in our study.

Vision: Improve stroke care through a deeper understanding of health and wellbeing.

Values: Promote health equity, honesty, privacy, and kindness.

 

 

Meet The Team

Nirupama Yechoor, MD, MSc

Principle Investigator

Devanshi Choksi, MBBS, MPH

Research Fellow

Mary Craven, MSc

Clinical Research Coordinator

Taylor McVeigh, BS

Clinical Research Coordinator

Samantha Mora, BA

Data Manager

Tanzeela Ranman, MBA

Project Manager

 

Contact Us

 

Are you a stroke survivor? Do you help care for a loved one who had a stroke? 

We are building a community of stroke survivors and caregivers to join our research. We want to hear about your experience with wellbeing after a stroke. Your story can help stroke teams improve care and support survivors during their journey of recovery.

Want to learn more? Contact our team at MGHNEUROICUCAB@MGB.ORG

Citation:

https://www.thelancet.com/article/S1474-4422(21)00252-0/fulltext 

 



 

Related Publications

  1. Identifying Facilitators and Barriers to Positive Illness Perceptions in Younger Stroke Survivors during Acute Hospitalization

    ISC Abstract MC 8.20.24 (2)

  2. Congruence of the Stroke Specific Quality of Life (SSQOL) Domains and Stroke Survivors’ Perceptions on Physical Wellbeing: A Mixed-Methods Exploratory Sequential Study

    SSQOL_ISC AbstractV4_final 8.20

     

  3. Health Equity in Focus: The Bugher Collaborative and SDOH in Stroke Care

    https://www.knowstrokepod.com/podcast/episode/7c435ee6/health-equity-in-focus-the-bugher-collaborative-and-sdoh-in-stroke-care

  4. https://open.spotify.com/episode/65HIeUb4uAv828CFe61yxI?si=6e16ec6e654f41c3
  5. https://www.neurology.org/doi/10.1212/WNL.0000000000206407